Date: 9/11/12 To: Dr. Gregory P. Bach Re: Testimony
In November 2010 I started having severe back and hip pain along with shoulder pain and arm numbness. This lasted for 2 months. In January 20111 started feeling better, only to relapse in February with the same symptoms plus the worst knee pain I ever experienced and temporary paralysis in my legs and arms. This lasted for 3 months. During the summer I felt pretty good and thought maybe I was over whatever was wrong with me. I was wrong, over Labor Day weekend of that year my knee pain came back worse than ever and my paralysis would last up to 8 hours at a time. Overnight my body felt like a body of a 90 year old man even though I was only 45. I continued to decline. I was having trouble remembering things and could not concentrate on anything. On two occasions I got lost while driving in areas I knew very well. I didn't know where I was or how I got there. I began having "episodes" where I would pass out and feel so weak that I couldn't hold my head up or keep my eyes open. It took every ounce of energy just to talk and my hands shook like I had Parkinson's. These "episodes" became an everyday occurrence.
From November 2010 until the time I first saw you I saw 18 different doctors, made three trips to the emergency room at 2 different hospitals, and was tested for everything under the sun. I also had 3 MRI's covering my head down to my legs along with countless CAT Scans. No one could figure out what was wrong with me. In the end the doctors gave up and labeled me with Fibromyalgia. Their answer was to drug me so heavily to try to alleviate the pain, which didn't work. During this ordeal a couple of the doctors thought it might be Lyme disease and I was tested 3 different times, every test negative. But the last specialist I saw, a supposed highly regarded Neurologist for Geisinger Health implied that this was all just in my head. My wife asked him about Lyme and in a nasty tone said "your husband does NOT have Lyme, he has tested negative and the test is extremely reliable".
Near the end of October 20111 had hit rock bottom. I continued to get worse and the company I worked for was setting me up to fire me even though at the time I was producing the second best numbers for them. A person that I knew that had almost died from Lyme in 2009 suggested that I might have Lyme. He gave me a copy of "Under Our Skin" to watch 7 months prior. I didn't watch it because I wanted to trust in traditional medicine and thought they would figure out what was wrong with me. Since they didn't and I was at the end of my rope, I decided to watch it. Wow, I watched it and saw that was exactly what I was going through. The next day I was on the phone with a nurse friend of mine that knew about you and the work you had done. As soon as I got your number I called for an appointment. I just wish I would have done it sooner.
I can't thank you enough for what you have done for me. I appreciate your compassion and the time you spend with me during my appointments. From the very first appointment you told me exactly what I was going to experience and you have been spot on. Since I first saw you in November 20111 have not had to take a single pain killer. Prior to that I was taking the max dose every four hours just to tolerate the pain. You have been treating me now for 10 months and I can't believe how much I have improved. I have had times where I feel better than I can ever remember, lending credence to me having this disease for 25+ years. I was able to golf for the first time in over a year and shot one of my best ever! The last time I played golf I almost couldn't finish because of the knee and shoulder pain that lasted for over a week.
Over the past 25+ years I have seen most likely over 50 different doctors. I have seen them for stomach problems, arm numbness, asthma, and back pain. I had my gull bladder removed, which didn't help my problems. I was diagnosed with asthma in 2000 and was recently declared in remission by my allergist. Thinking back, no one ever found the problems. They always just tried to control it with medication, the whole time not knowing it was actually Lyme.